Category Archives: social support

Audit, Inspection and Scrutiny: the three ugly sisters?

This popped into my inbox today:

“The need to drive up the quality of care for patients, whilst delivering efficiency and productivity, is a key principle for the NHS. As pressure on NHS finances continues to build, UKAS accreditation is increasingly being used as an effective way for purchasers and commissioners to demonstrate that they can achieve ‘more for less’.”

I felt a stirring of irritation. This blog is the result……….

I know organisations have to behave commercially and tick boxes in order to thrive. I spend part of my working life encouraging and supporting charities and NFPs to do exactly that, but without losing their heart and soul to it. It is possible. But as an old nurse (registered about a century ago) and vehement supporter of the NHS original principles of free at the point of need and paid for by the entire community I am increasingly dismayed by the passionless, sterile performance of the people tasked with – and paid handsomely for – managing “public” health services. I have seen patients become the enemy, clinical standards side-lined in favour of improvement on the balance sheet, kindness become irrelevant, and buzzwords and trends take the place of clinical and compassionate behaviour. Health and social services are scrutinised, inspected, audited, governed, examined, professionalised more than ever before and we still have Winterbourne, elder abuse, Southern Health (pauses to spit), frequent reports of casual abuse and cruelty (that we know of), and we will all know those “care” homes with a good CQC rating which pong and employ people you would not want to sit next to on the bus. We will all know of supported living services that are little more than one person institutions with little or no meaningful activity and engagement – or to put it another way, that warehouse people in units of one, creating the illusion of choice and a Life but deliver isolation and fear. We have seen Southern Health reduce victims and loving families to statistics and irrelevancies, destroying people in order to prop up a system that sucks and protect the very people who allowed and encouraged the system that killed people and fixed the blame on others, with lies, obfuscation and bluster.

Some inspection agencies, several tiers of consultancy and management and many more are too often yet another layer of “approval” or box ticking to chuck at organisations. Along with services like 111 –  a dangerous irrelevance that often removes much needed funding from frontline services for the return of reduced standards and increased risk –  they also create a cash cow for canny providers without delivering any improvement in clinical outcomes, or supporting real people with the very real challenges of everyday ill health. We seem to simply carry on increasing layers of approval, fresh hoops to leap through (some with fire) rather than examine very basic factors. Often the people creating those hoops are not clinical and have little understanding of how  things actually work in the real world. I keep hearing that we need more funding for this that and the other – I keep seeing a variety of groups being blamed for an ever increasing number of failures and deficits: currently GPs are getting a hammering despite being possibly the last group of professionals who should be blamed and who, along with dedicated skilled nurses have kept things going against the odds. Commissioning services is clunky, inappropriately targeted, poorly contracted and badly managed, which is a criticism of the process –  again often created by people who do not understand the real workings – and not the people who have to work with it. The competition itself reduces the capacity to develop and really grow health and social care support services because contracts are not only badly drawn and managed but are up for renewal so frequently it is impossible to invest in services and also make that holy grail of profit. Profit is not going to be the first thing to go.

I firmly believe in a skilled and educated workforce well managed and led and supported with career choices and pathways. I also firmly believe in holding organisations and individuals to account. I believe those can be delivered without the huge self-propagating self- perpetuating roundabout of new mandatory qualifications and accreditations, incompetent inspections, and without the workshops, consultancies, projects, papers, enquiries, processes, requirements and bottom feeding organisations that have sprung up around services that are actually intended to protect, care for and nurture us.

There comes a time when the volcano erupts, the boil is lanced, the pus drains and healing can take place. We need to recognise that the privatisation experiment which was trumpeted as the way to increase choice and competition which were equally being promoted as in our interests – I am pausing for the laugh here –  is a failure, delivering little more than profits for largely incompetent organisations and draining the body of the NHS of resources and talent. Choice is not what sick people want, overall – they want skilled professional care, close to home, delivered kindly by people they trust and with their involvement in the process. And answers if something goes wrong, with a meaningful apology attached. Dividing professionals and organisations with “competition”, asking for innovation when compassion is good enough, blaming good people for systemic failures and expecting mountains of assessments, graphs, justifications, and hounding good people for honest mistakes does not result in decent health and social support.

Have a look at this: Laugh and then weep.

Advertisements

Brexit. Trump. Strictly. No, don’t click me away! Bear with.

Cards on the table, I don’t much like the tellybox. I watch, occasionally, stuff like Railway Journeys with Portillo, or that wonderful Canal programme with Timothy and Prue, but on the whole most of it passes me by. Most of what I do see is caught accidentally when the rest of the family are watching and I stumble into the room on my way somewhere else. However, I have become surprisingly interested in Strictly Come Dancing this last couple of series – maybe it’s because I remember watching the original all those years ago, usually with an altered state of mind which helped.

Bear with…….

This year has been in interesting year for anyone with half an eye on politics. We have, allegedly, seen a rise in the proletariat offering a bit of a slap to the people who have seeped and dribbled into offices of power and decided they know best. Not only that they know best but that the proles know nothing and need to be kept in their place. Our place. To that end, arguably, Education and Health, and to a large extent the Criminal Justice System and Housing, have been morphing in recent decades, leaving behind much of the social construct and responsibility that most of us value and developing a profit motive that no longer has to try to hide. Priorities in socially important organisations changed of necessity – it was do or die –  and in part that has been supported passively by people still believing that someone with a lot of money and a private education knows better than them. Pair that with the desperate need of many to simply keep body and soul together leaving little time to be involved in much else and a consistent lowering of expectations and we have a perfect storm of passivity and fatigue that allows people who do have the time and money (and the networks developed at school and Uni and by family connections) to buy a pathway into power. I mention no names…….

And then came 2016. Hands up who approached 2016 thinking “Thank Goodness 2015 is over, what a year, it can only get better”…..? Yes, well that went well, didn’t it? Apart from lots of lovely people dying who had created my history and the musical and artistic backdrop to my youth, we also had Brexit and Trump. Divisions created deliberately by the powerful to conquer the masses led to the very public murder of one woman, an increase in the confidence of people with shameful attitudes, a legitimising of all kinds of isms from ageism (the older generation have spoiled things for the young/the young don’t understand the issues) through racism (go back to where you came from/who will you blow up next) and a general atmosphere of mistrust and hatred. Conversation was replaced by brick throwing and chanting, voting was seen as an act of defiance rather than an inalienable right and duty and more people voted for Brexit than at any General Election for years. Public dissatisfaction with politicians who fiddle expenses and despise their electorate was having some practical results. Trump had already hopped onto the bandwagon and shamelessly – alongside some of his opponents and supporters – traded insults and lies rather than debate and detail, whipping up his gang to hatred of others, violence, intolerance and a lack of facts. Taking mansplaining to a whole new level, and behaving publicly in a way that many parents would justifiably have slapped their children for, he set new and deeply unattractive guidelines for public debate and demeanour. In both of these events we witnessed the powerless grasping onto something over which they believed they had some control, a new experience for many. In reality the power and control remained exactly where they already were but the illusion of influence was conferred, more expertly in some areas than in others. That precious vote, hard won by ordinary people over the years, wrestled from the wealthy and powerful and certainly not given freely by them, was being manipulated to support the very people who stood to gain most. And that, Ladies and Gentlemen, is politics in the 21st Century. Ordinary people are encouraged to think they have had enough of the elite – by some of the elite – in order to get them to vote for the elite.

But something did happen. The idea of sticking it to the elite has taken hold. The concept that perhaps people can make choices, sometimes dangerous or wrong choices, and define their own reality and outcomes and live with the consequences is becoming clearer. And so we arrive at Strictly. I told you to bear with. Ed Balls joined the Strictly dancers and immediately gained the publics support for dancing badly, but with charm and warmth. The pubic enjoyed his efforts and his ineptitude, his determination to do his best and move forward – they liked it much better than some of the other dancers who danced better but were less appealingly human and had less distance to go to dance well. Someone who until recently appeared as part of the elite was shown to be Like Us. Not only Like Us, but likeable and funny. He charmed. The judges were ghastly to Ed and that just increased his popularity – they gurned when he danced, were outright discourteous, were way less encouraging to him than the other “better” dancers and generally behaved like, well, like the elite. Clearly they are the experts, clearly they are dancers, but their unpleasant behaviour rendered that immaterial – we liked Ed because he wasn’t an expert and wasn’t elite. We didn’t like the judges being smug and telling us what to like and what not to like. We Brexited them. We Trumped them. We voted in droves for the Little Man. Apparently. Well, job done. Ed is rehabilitated and the People have spoken. He has worked hard and redefined his place in the public eye.

Quite a few of The Elite are chums of mine. Quite a few of The People are chums of mine. I like them all – I think there is a little bit of fabulous about everyone, without exception. Their politics are not what I admire about them – if they charm me and make me laugh, if they have a brain and a heart, are kind, and hold a conversation well that is what I admire. What they do in the ballot box is not my business. What is my business is what happens when the votes are counted and policy decisions are being made. As someone who has worked for years in health, justice and social care and across all the sectors, and as a school governor, I have seen how public policy impacts actual people. Left and Right are almost irrelevant as long as socially important organisations and services remain at the whim of people many of whom will say and do almost anything to sit in a seat of power, many of whom have no meaningful experience of the departments they lead ( I am sure you know what I mean and who I mean……), and who potentially change direction regularly every few years. When there is actually a direction to change and not just a dogma to follow.  While we have no available Intensive Care beds for children anywhere in the country, while nearly 9,000 people slept on the streets in London alone in 2015/16 – and that is only the recorded figure – and 57,750 households were accepted as homeless and in ‘priority need’ in the same year, a six percent rise on the previous year, while mental health services are randomly delivered and under-funded and a false economy as so many people bounce around the expensive system, while almost as many people leave prison unable to read as entered it (this is changing, thank goodness, thanks to some fabbo people, but so slowly), while people with a criminal record are routinely excluded from jobs and housing denying them the opportunity to desist, while all of these things and more are happening Left and Right can argue until blue/red/green/yellow/purple in the face but it will remain a disgrace and the responsibility of all of them. And all of us.

There are some properly decent people in and around government and in and around some of the organisations that develop and deliver services, people who actually want to make a difference and not a fortune. I insist on feeling hopeful that the vote for Brexit – and Strictly – is an indication of the start of increased popular involvement in government. Whether or not I agree with outcomes upon which people vote does not matter – it is up to me to make a case for my view and debate properly. If votes go a different way to the one I would like I still rejoice that democracy has taken place. We have become a tad complacent in recent years, the freedoms and opportunities that have taken so long and so much painful sacrifice to attain are at risk. That complacency has allowed bad practices to slip under the wire – without some darn good journalism the expenses scandals would have remained unknown, for example, or at the least unremarked. Our inexplicable faith in people in positions of power, supported by the anaesthesia of media dependence, has let us take our collective eyes off the collective ball. My optimism tells me that people are perhaps willing to become more engaged and knowledgeable about the things that will affect their lives and less tribal in their allegiances. Brexit and Strictly both cut across most demographics…….

So, vote for Strictly! Vote in your local and general elections! Talk to your MP, find out what she or he actually thinks and don’t take it on face value – challenge, probe, question, scrutinise. And crucially, tell her or him what you think and what you expect of them. Own outcomes. Learn to Salsa and wear some fancy clothes. Dance and vote like no-one is watching.  And remember that T Blair is creating a global organisation to combat populism  – that’s you and me – and promote globalism – the thing that fills his pockets. We must be becoming dangerous……….

Look at me

I saw a few posts on social media this week about people who ignore their children in order to check their phones and messages…..you know the sort of thing, a picture of a fed up child and a parent staring at a screen. In my study (I am on the fourth floor and commonly known as the Mad Woman In The Attic, not without some justification) I watch parents taking their children to school and some parents even have earphones in – blocking out not only the wonderful sounds of the morning, birdsong and breezes, but also their children, who stump along next to them glumly, often trotting to keep up as the uncomprehending parent  marches ahead in order to get that task out of the way and get on to other important things such as staring at a screen and drinking coffee. It makes me feel sad…..

It also makes me angry that we are still at this point in our evolution. For the past thirty-plus years I have been attempting to inject humanity into health and social services on different levels, since the horror of student nursing (about a hundred and fifty years ago….)  when, on my first mental health ward for elders (the clue was in the shorthand title: PsychoGerries) I trotted along for my first day to discover a shabby-coated and smoking staff nurse standing – slouching – in the centre of a semi circle of commodes on each of which there was a naked elder. Both men and women were lined up together for ritual and casual humiliation. After a brief pause to get my breath as I stared at him I sent him home (well, there were a few well chosen and short words as well) and along with some chums set about restoring a little dignity. At every stage, for years, I have seen that same ritual and casual disrespect and humiliation handed out to all and any people using services by people who, if you met them elsewhere would probably seem like decent human beings. From elders having crap food shovelled into their mouths by smoking and grubby “carers” to people with learning disabilities ignored and belittled for being who they are, not even allowed to choose their own bedtime, their own food, the people with whom they will spend their days – their lives.

Don’t get me wrong: there are some brilliant support people, some fabulous organisations who strive to be good, to deliver humanity in their services and campaign for change. I know, and have worked with, many fab people who actually care and understand what that means (ie that it isn’t just about smiling a lot and nodding, but it is about taking risks, liking and respecting the people around you and understanding that each of us is individual – and encouraging that). But in the grand scheme of things these people are too few, and the others are tolerated because of where we are in our evolution. Which takes me back to where I started.

Being with people – supporting people, caring, whatever word you use, and the words matter because you will behave in a way that the words expect – IS the point. The things we do, taking children to school, supporting someone to eat, going to a gig with someone, supporting someone to put their clothes on, shopping with someone, they are all component parts, each as important as the other, as important in how we do them as well as that we do them at all. Those grubby “carers” shovelling food into someones mouth are indeed performing the task in their job description but their main task – of being with someone and having that relationship with someones humanity, their person-ness – has been lost. How much more time and effort would it cost to look at the person in front of them and see their person-ness and be kind? But that kindness is by and large not factored into how we commission, deliver, train for, reward and recruit to support services. Our task oriented focus takes us from task to task, KPI to KPI, box to box and target to target. When was the last time you saw the word “kind” in a job description……?

I remember – and I wish I could forget – watching a “carer” stand up, walk over to an elderly woman with dementia, and without a word roughly haul her up and out of her chair because it was “toileting time”. I sent a nurse home one night years ago because as we were nursing a comatose dying woman in her bed the other nurse leant over her – right over her – and said quite audibly to me “I don’t know why we are doing this she will be dead by the morning.” Casual cruelty, thoughtless indignity, the view of people as lumps of meat to whom we have to do things in order to earn a pay packet. Hauling ourselves and the people we support from task to task as quickly as possible…..for what? That task is a means to an end, a conduit through which we can nourish and nurture the relationship – it is the means, not the end.

It is that corporate and individual refusal to see people as human, as individuals, that allows learning disabled people to die in hospitals they should never have been in far away from the people who love them and allows the people who allow it to happen to bear no meaningful consequences.  It allows elders to be warehoused in buildings from which they will never leave until they die, who will never again feel the breeze on their faces, hear the birdsong or the sea, have someone look them in the face and hear what they are saying, be useful, be heard. Be a person. Have fun. If we are not having a little fun along the way what is the point?

Please take some time to look at the links here. Stay Up Late is a brilliant grassroots charity promoting the right for people with learning disabilities to have a choice about how they live their lives. That it is needed at all is telling.

The more difficult read is the piece about assessment and treatment centres. Read it and weep. And then sign up to the 7 days of action. Please

And please read about Connor Sparrowhawk and his phenomenal circle of support. Even after his avoidable death the people responsible have had little or no consequences, even after compounding the pain by denying wrongdoing, doing a bang up job of saving their own skins, and reducing the humanity of everyone involved. Shameful. Painful. And his Mother has responded with dignity and energy – I listened to her on the radio a few months ago while I was driving and I had to pull over and stop because I was weeping too much to continue driving.

Home

https://theatuscandal.wordpress.com/2016/04/20/natural-causes/

https://www.opendemocracy.net/uk/shinealight/clare-sambrook/on-connor-sparrowhawk-s-avoidable-death

The “care” industry is regulated more now than it has ever been – there are audits, documents, inspections, investigations, inspectors, investigators, commissions, boxes to tick, all manner of things supposed to keep us safe. And yet the abuse is still there, as open and filthy as ever. Safety is not guaranteed – and anyway, is safety the most important thing in life? Isn’t fun –  and autonomy, and independence, and risk, and loving and laughing, making mistakes, and pain and heartbreak  – as important? Aren’t those things the things that make us human? Those safeguards will never take the place of kindness and humanity, of seeing the person in front of us and respecting them just for being themselves. Let’s try that – and owning it when we get it wrong – for a while and see what happens………

 

 

 

 

 

 

 

 

 

 

 

 

 

A little pain goes a long way…..

Gosh how we undervalue our physical selves! All High and Mighty about values and philosophies and high-falutin’ principles we ignore the uncomfortable truth that without physical comfort we can sink.

After a week of volcanic uncontrollable pain which I knew was temporary but that didn’t help, the pain is coming under control and the say-it-quick-and-it-won’t-matter cause, a massive infection, is starting to abate. Good grief I even got dressed for part of today! The worst is over and I am re-entering the world of humans again even though I still can’t talk without sounding like Sylvester Stallone chewing socks. I want to stay awake all night and read poetry! Write poetry! Get that sunrise that has been in the back of my head right to the front and then onto canvas. Read A Brief History Of Time again until I actually get it. Having spent a week unable to do anything other than lie down and let my mind rattle around I want to jump and dance – not that I could realistically anyway with two left feet and a dodgy knee but the urge never goes. Actually it’s more like three left feet when I get going – how on earth do cats and dogs and other cleverly quadruped creatures co-ordinate four limbs? I struggle to keep the two legs I have under control, on a good day.

I have dived deep into the many dreams that came courtesy of the analgesia and had the time to understand them – without that luxury I would have romped out of bed the morning after my dreams and failed to reflect enough to see that, for one example alone, on one night the unrecognisable woman in the dream was my Mother and lying there following the dream backwards I was able to start to understand a few things that had foxed me for years. With eyes closed and mind open I could travel around inside my head and find some of the obstacles there, and start to remove them. Thank you analgesia.

Moving from almost unbearable pain towards comfort it is possible to close my eyes and instead of the scary black holes that were there until today, see in their place now a multitude of constellations that give light and warmth as well as shade and comfort and I can watch and follow them behind my eyelids enjoying their shapes, colours and variety. They offer entertainment and reflection. During the worst times of the last week as a distraction I forced myself to stop and listen to the birdsong outside my window – a window through which I have, with great pleasure, watched the seasons changing for more than fifteen years and through which I have watched my children play and grow, and where my granddaughter now plays too. I was as warm and as comfortable as I could be given the pain and it was possible to start to look forward to the Spring listening to those birds, to picture the flowers and hedgerows and smell and taste the asparagus, spring greens, cucumber, strawberries, rhubarb as if they were already here. I was in my own bed, my own house, with my children making sure I was comfortable and my books and cushions around me and a shedload of pain relief making life ok.

I was able to look forward past the pain because I was physically secure. How much would I have coped with the pain had I been cold, wet, outside and without comfort? I have little enough to be grumpy about even with the temporary illness, but I still managed it from time to time. How dreary, how impossible to cope with each day had I been homeless or stateless, insecure and alone. I am one of many people fortunate to have the opportunity to work and create an immediate environment that is comfortable, happy, peaceful. I have provided for my family, alongside my husband, and we have done it pretty well. We can be satisfied that we have done a decent job and we reap some of those rewards in terms of love and affection, support and security, wellbeing and happiness. Damn, I am lucky! There are however many people denied that experience, denied the opportunity to raise their children in safety and warmth, sometimes even without adequate water, food, protection. As I look forward to Spring and those strawberries many others look forward to nothing at all, hoping simply to exist for another day, hoping to keep their children alive, if not safe. There are people living in hospitals who should never have been there and who have suffered infinitely as a result, the product of arrogant careless models of “care”. There are people bereaved because someone didn’t give enough of a damn.There are people who sleep on streets and benches because they struggle with a world of barriers and expectations. There are people in prisons because they have no meaningful means of breaking away from the ropes that hold them in place and fix them in the amber of chaos. There are elders locked inside “homes” who will never ever feel the breeze on their face again because there is no-one to help them outside because of “staff shortage” and because of people who don’t get that some things matter enough to make them happen even if they don’t show up on KPIs and audits.

Creative as I am I cannot even begin to understand how that feels. I can empathise and I can witness – and both of those things matter and support a greater understanding and tolerance. I can try to make a difference, and I do try. But those things, those terrible circumstances, will continue for too many people. That is almost as unbearable as the pain…….

As I recover and anticipate with pleasure and gratitude the rhubarb, spinach and strawberries I will keep in my head all the people who I know are not as happy or lucky as me. I will offer them my love and respect and will continue to try to make a difference in the tiny ways available to me and I will try to create more ways, and I know many many fabulous people who do the same and more, and it is a genuine honour to know them.  We will keep on trying, in gratitude and humility and this last week has helped me to focus on that. Otherwise what is the point?

 

Freedom this Bank Holiday Weekend……..

Every morning I wake up and whatever else is happening I recognise my good fortune and articulate my gratitude. I think about the day ahead, and reflect on the day before. This morning, looking out of my study window at the world outside my thoughts drifted down a path that pondered Freedom.

Living in a democracy, perhaps I am politically free, although that is dubious given how much people pay to become politicians and how much it costs them to retain power. Their wealth supports their power grab.  But I have a vote which matters and for which people gave their lives, so partially free perhaps and indebted to those courageous people.

I am free to work and earn my living, earn my self respect. Dependent on the people above to enable jobs of course, and dependent on me doing a good job.

I am free to marry whoever I choose, and that freedom has been refreshingly extended recently, partly because of our democracy and our right to lobby and protest peacefully – although that too is under threat when police measures so obviously discourage peaceful protest and peaceful and passive campaigners are taken to court for exercising their peaceful rights.

I am free to have a religion or not have a religion, but sadly not free to express serious doubts about religions because the weight of those religions are impacting my own, and their money and votes talk.

I am free to live in the expectation that I will not be abused, although that too is impacted by others who might disregard my freedom to live safely and securely and the impotence, ineptitude and apathy of those who might want, or be tasked with, protecting me.

Despite the limitations, I live in what we call a free society. But on what does my freedom depend?

While 9 year old girls can be bought and sold and abused and raped in “marriage” in some cultures, how can I be free?  While a country with whom my own country does business and exchanges money and with whom we have a relationship, is passing into law the right to stone to death someone who has sex with someone who is married but will not pass a law to protect those children who are being sold off how can I be free? When cutting into a child  of any genders genitals and mutilating them is accepted and condoned, how can I be free? When entire corporations condone the use of an animal slaughtered in a way that my society had rightly decided was barbaric and disallowed but which has, somehow, become acceptable again, how can I be free? How can I ever be free when my fellows are trapped?

Our freedoms are bought with our courage and our vigilance. Without the bravery of the people who marched, fought and died for my right to vote I would not have that democratic right; without the real struggles of people who valued freedom I would still be my husbands property and married to someone chosen for me; without serious campaigning and people prepared to endure hostility and violence I would not be able to earn a living wage. The key to life is movement, when we stop struggling and moving we die and that liberty is lost .

My freedom is your freedom, and yours is mine. As fellow humans, as people, we share the right to the freedoms that do not reduce other peoples freedoms. I will never be really free until all people are free and for that reason I will continue to strive for freedom for all of us. Freedom from the tyranny of crime, substance mis-use, abuse and the after effects of abuse, poverty, violence, oppression, political deviance, homelessness, fear and prejudice. In my small life there are opportunities to make a difference and I have an obligation to take those opportunities and pay back some of the debt I owe. It is my pleasure to do so.

 

I am looking out of my study window enjoying the birdsong, the breeze and the people passing on the pavement below. I can do this and I can write about it because of my liberty. Let us value those freedoms and strive to enable everyone to experience the same liberation. Let us not take our eye off the ball and let in those who want to reduce our freedoms – there are many of those, and the most dangerous are those who do it only because they believe they are right, who have a belief system that values their own principles and degrades mine. The picture outside my study window is beautiful because it is my view and I value the things in it, and one of the things I value most is that those things are not reducing anyone else. As I play golf this afternoon I will rejoice that I have the freedom, means and desire to do so, and can enjoy the wonderful company of my friends. We all deserve a life worth living, in freedom and in peace.

Have a great bank holiday weekend!

 

 

 

 

 

 

 

 

 

 

 

 

A criminal waste, a disabled society. Unlock Your Future.

Easter is a time for reflection. I have been reflecting on the many people it has been my privilege to meet over the years. Many of the people I have worked with are people that the Jesus that I like to imagine would recognize: vulnerable, damaged, disenfranchised, hostile, broken, pathetic, lost, abused. I like them.

Disability is a strange concept, and many of the people with disabilities who I know would strongly suggest that it is not them with the disability but society, culture, which is disabled or which provides the disability. We build streets fit for the able bodied, buildings that exclude all but the well and the fit, work that suits only the driven and the straight and “normal”.  We see “work” as a means for economic growth and acquisition, and ignore the very real other benefits work can bring such as purpose, esteem, quality of life, respect. We patronise the successful disabled and express astonishment at their success. We create targets and drivers that take no account of alternative talents and aspirations, that fail to value otherness, indeed in a tabloid sense disability is so often viewed simply as a problem, a drain, a fiscal error.

If you look for the word “disability” online these are some of the words you get:

handicapafflictiondisorderdefectimpairment, disablement, infirmity  incapacityweaknessinability • Disability can make extra demands on financial resources.

Transfer those words to our environment and see what happens. Our shops have defects and will not allow wheelchairs in, our streets are afflicted with high kerbs and a lack of ramps, many work environments lack the capacity to value a range of people and talents and are, as a result, weak and impaired. Recruitment is afflicted by a set of rules and processes that despite legislation and encouragement still often excludes too many and that handicaps the workforce.

I would go further and suggest that people with a criminal history have been handicapped or disabled by society. Their forensic history effectively cripples their employment potential and afflicts their family life. If we suppose that it is indeed society and our culture that creates disability, in effect cripples its citizens, it follows that society can redress that. Some legislation attempts to do that by supporting “equal opportunities”, but equal ops can only happen if we view all candidates with an equal eye and the work environment is capable of accepting all candidates equally.

If you look for the word “criminal” online these are some of the words you get:

unlawfulillicitlawlesswrongillegalcorruptcrookedviciousimmoralwicked, culpable, disgracefulridiculousfoolishsenselessscandalouspreposterousdeplorable

I notice that none of those characteristics is irreversible. They are a description of how it is at the moment, not how it will be in the future. If we continue to exclude people from employment, to ignore the many benefits a varied and experienced workforce can bring, to expect jobless hopeless futureless people to suddenly somehow behave like employed, hopeful people with aspirations on release from prison, we set ourselves up to fail, and we fail our communities.

I don’t suggest for a moment that we employ anyone and everyone into any vacancy without safeguards and safety nets. I don’t do soft and fluffy. I do however suggest that we create those safeguards and safety nets and take the trouble to include the excluded and create a properly integrated and cohered environment in which everyone is valued, has the space to grow, and has their aspirations valued. Not because it is soft and fluffy, but because it reduces the risks of offending, of disaffection, and increases the chances of people buying into their communities and making the effort to support their futures and crucially it means we reduce the risk of missing out on some serious talent. Back in the day when social and health care services were even more rigid in their outlook than they are now, I employed an ex-offender who had done time for murder. I employed him in elder care. This was not universally welcomed…….But I ran the checks, created the risk assessment, spoke to the people I needed to speak to and importantly offered him a mentor and some effective support to re-adjust. It was a success.

No-one would suggest  there is an easy answer or that it is a simple matter. But that is not a good enough reason not to try.

No Offence CiC is a social enterprise  and I am lucky enough to be on the Board. We are not driven by private profit and we facilitate open access to crime and justice information. By challenging barriers to positive change and influencing future policy, our objective is simple: to make a difference. My own organisation, Mayall Management Ltd, is proud to support the Unlock Your Future project that No Offence is driving.

http://www.no-offence.org/

Unlock your Future

‘Breaking down barriers to employment for people with convictions’

This project will focus on identifying and breaking down the barriers to employment for people with convictions, to bring employers and employees together.

A simple key discreetly placed on a job advert will indicate that this employer will consider all applications on their merit and not their past.

Many employers have a skills shortage and would benefit from an increased pool of suitable candidates from which to recruit.

Unfilled vacancies can have an economic impact on any business and increase pressure on other employees attempting to make up the resourcing short fall.

We need a network of champions to raise awareness of this project and support employers to use the key either on their own website and/or on our jobs board and spread the word to those people looking for a job and also recruit other champions. Could you help us?

Employment provides us with a significant opportunity to break the cycle of reoffending. If you are an employer please join our network and we will send you the key to use free of charge.

http://www.no-offence.org/static-page/unlock-your-future/

 

Food Glorious Food?

Sharing meals allows us to come together and spend quality time with each other. It increases communication and understanding.  How many of us had our first experience of another culture through food? And coming together to prepare and eat food is part of many rituals and traditions. Food plays a big part in faith and in worship. When one shares in the Eucharist, it is said to be a  sharing of Christ’s body and blood, and worshippers are reminded of their responsibility to share all our meals with others. As St John Chrysostom once said, “You have tasted the blood of the Lord, yet you do not recognise your brother…You dishonour this table when you do not judge worthy of sharing your food someone judged worthy to take part in this meal.” Most faiths and religions have food rituals, most cultures have food rituals and norms. Food is significant. Food rituals – cutlery or lack of, how the food is produced (is it Halal? Organic? Vegan? Kosher?), how it is presented, how it is eaten – matter deeply to us all. The only people for whom those things no longer matter are the hungry, and even then I have known seriously hungry people refuse non-kosher or non-vegan food. So it is quite simply that important.

So…..

How many times recently have we heard about nurses now being expected to “feed and wash” patients for a year before they train? How many times do support workers and health professionals refer to “feeding” their patients or clients? The act of eating is reduced, for some, to the passive “feeding” offered by “carers”. It is reduced, for the care-givers, to a task to be got out of the way before the serious business of training, the important job of “nursing”, can be carried out. This simple attitude reduces human and humane care giving to the status of animal welfare. Now, let us acknowledge that there are similarities between the two, and animal welfare is very important. But in offering to care for and support other human beings we need to respect and acknowledge their humanity, and one of the few things that identifies humans as distinct from other animals is the development of specific and identifiable social rituals, especially around food, and the food rituals often define what we are as people: they indicate and specify how we live, what we believe, what matters to us.

The attitude that accepts us saying we are going to “feed” people when what we should  mean is that we are going to help them to eat or support them to eat is the same attitude that allows nurses and care givers to say things like “I have done Mrs Brown” when they mean they have helped or supported Mrs Brown to wash, or dress, or change her colostomy bag, or any of the other deeply personal, uncomfortable and intimate things carers do for us.  Those words, casually used and casually accepted, reduce our collective humanity, remove our independence. They remove the respect for our humanity that we properly expect our nurses and carers to demonstrate. They allow the casual neglect – and even the active cruelty – that we have seen in Winterbourne and at Stafford, and the many other places that have not yet hit the headlines. How can we pretend to be surprised by those events when we use the words that support the attitude of neglect and cruelty?

The words we use define how we behave, demonstrate how we think.  Let us challenge the use of words that encourage patient-passivity such as “feeding”, let us encourage the words that support active care such as “supporting, or assisting, to eat”. The former gives us a picture of food being shovelled into a patients mouth as a “carers” task, the latter gives us a picture of  someone in control of their food, being helped to perform their own task.  Notice the difference between “bathing” someone and “helping someone to bathe”.

When we become vulnerable through age, illness, disability or other reasons we often lose the option of privacy or dignity only because of the attitudes of the people tasked with supporting and assisting us. There are many discussions about why care can be poor, and often the poor wages are cited. And that is a factor – pay peanuts and you get chimps, and low wages do not reflect the importance of the job – but there is never, at any price, wage or  reward any excuse for reducing another persons humanity, for dragging away another human beings respect and trampling on their dignity. Individuals are responsible for their own behaviour and we should expect people recruited to care and support to behave properly – but the modelling of those good behaviours will flow from the leadership. If the people leading the services and the organisations do not demonstrate the crucial behaviours that indicate respect, humanity and the support of autonomy and independence for all then the people following those leaders will have no incentive to do so.

If you offer someone care and support, please, feed your dog but support your patient to eat.

The Accidental Buddhist

How are you doing? Do you sleep well? Do you manage to hold all the boxes in your life inside the one container that is you? It isn’t easy. We all have to find our own pathway to peace.

A few months ago I was casually clicking about, as you do, on the laptop in between doing more meaningful stuff (I bore easily!) and I started to read a blog about Buddhism. To my astonishment I recognised myself. Raised a Catholic, and now a Buddhist. I was a little surprised……….

For a few years I have been doing what I discovered to be meditating – spending time focussing on nothingness and depth, breathing, and looking straight ahead reasonably fearlessly. Re-aligning myself, if you like, every day. I fell into doing this after a turbulent period, a time when I was not sure if I knew who I was or what I wanted to be, if I had any meaning. Very selfish! It took me years to realise that in fact being centred and sorted was the best thing I could do for my family, friends and colleagues.  I accidentally started to meditate while taking a break from paid work some years ago to re-evaluate things. I had come to a full stop and needed to do some real things like painting pictures, writing poems, playing some music. During those activities I found myself lifted into a new place and a new way of thinking and it was apparently and very naturally simply because I was deliberately creating things – I began to think around corners a bit, think not harder but better, with more colours and less white noise. I had to let the colours and words in my head out of their boxes in order to create the things I wanted to – needed to – create. There was no option – it was a simple need. It was accidental. I now make time to do this, often just before sleeping, but sometimes at work, or I pull the car over into a parking space and tap out, and it happens anyway when I am painting or playing music. I make the time. That isn’t always easy either: washing piling up, letters to answer, work to be done, people to see. But the best way for me to manage all that is to make the time for the tapping-out-thing.

Accidents are such a huge part of what we do – the incidental or accidental conversation, the inadvertent over-hearing of a radio programme that chimes with you, meeting someone at a conference or dinner. The excitement of knowing that most of what happens is by virtue of accident is truly liberating! And this from a woman notoriously wedded to GANTTs and action plans, who examines all the What Ifs with a fine toothcomb. Who knew!?

A large part – the largest part –  of my drive at work, before and after my break, has been around respect, dignity, Human Rights, giving a damn. When I began reading – accidentally – about Buddhism I realised that I had been practising the basics of Buddhism for years. Accidentally. I don’t think the diagnosis of Buddhism made a difference to what I was doing, but stumbling across the name for how I live was extraordinary. And I don’t want a cure!

What works for you? How do you re-arrange the shelves in your head so that they fit?

Disabled or Liberated?

This is a first:I stopped myself talking this morning. What was I doing? I was about to say that my disability was “only caused by age”.

I am no Spring Chicken – in my fifties and with a grandchild I think I can claim to be comfortably middle aged. I became disabled a couple of years ago with severe joint pains and deteriorating ligaments and have struggled with my mobility and the pain since, using my walking stick and relying on my car much more.  It has been a challenge at times, but as I blogged a while back it has also brought blessings. It forced me to re-evaluate what I do and how I do it – from a bouncy and energetic boss (probably rather irritating in hindsight…!) to a more paced and interactive leader, I think my style of management improved. I know the quality of my relationships improved as I had no choice but to take time to listen and engage with people rather than hop around being dynamic! I see people doing that whole energetic-crazy-lookatme-letsgetitdone crap now and frankly it simply annoys me and I can see it annoying others. It fails to engage, fails to create the right relationships. So I am grateful for my disability, however weird that sounds. It liberated me and gave me better relationships and much better insight into how people, organisations and relationships work. It also, incidentally, showed me who my friends were………

So, I am middle-aged but only in my fifties, not ancient (although I suspect my children might disagree). And I was about to say this morning  that my disability was “only” about age; to reduce and trivialise it and degrade it as unimportant because I am older. Well,  sod that for a decade of the rosary. Age, disability, even simply being a woman, are too often trivialised. We are expected, as we get older, to put up with more and more crap, to recede into the background and fade away, to sit at home, be grateful, and wait to die. Either that or lose our dignity in the rush to appease the Gods of Youth and have ever more flesh tweaked and sliced and be more and more uncomfortable in our own skins. But whatever we do we are trivialised – my own Mothers experience of hospital care as she was dying, in her eighties, was cruel, undignified and inhumane beyond belief. The recent outcry about the Liverpool Pathway is entirely justified, and certainly from what I witnessed during that time nursing as an overall profession has lost much of its claim to moral high ground and to “caring”,  notwithstanding the few – very few – nurses who still seemed to give a damn. The elders on the ward my Mother was on – a Stroke ward which was bizarrely touted as excellent by inspectors who mercifully never had to actually use the service – were stripped of any dignity, denied care and compassion, and hardly viewed as human beings by the people with the word “care” in their job descriptions. If it had been a childrens ward there would have been a justified public outcry. Why should age reduce that need for dignity and care? Our expectations should not be lowered incrementally with our increasing years.

And that, my friend, is why I stopped myself saying that my disability was “only” age related. That does no favours to either elders or the disabled. Whatever age we are, whatever the disability, wherever we come from, we should never be expected to tolerate less than humane treatment and compassion. Whether we are ex-offenders or inmates, elders or children, Christian, Atheist, Muslim or Jewish, living in poverty or comfortably off – whether we live in an affluent state or a developing nation – we deserve the benefit of humanity. It is never “only” age, colour, status.

There are many organisations who deserve our support in order to protect our humanity and dignity. Please check out, for that reason, the following organisations, as well as your own, more local, ones and others:

PACT http://www.prisonadvice.org.uk/

NACRO http://www.nacro.org.uk/

Spark Inside http://www.sparkinside.org/

AGE Uk http://www.ageuk.org.uk/

The National Autistic Society http://www.autism.org.uk/

Hft http://www.hft.org.uk/

St Martins Emmaus http://www.emmaus.org.uk/

Porchlight http://www.porchlight.org.uk/

Demelza House http://www.demelza.org.uk/

The Big Issue http://www.bigissue.org.uk/

UNICEF http://www.unicef.org.uk/

Tea – the cup that cheers….or WMD?

Ah, the whistle of the kettle, the soothing plop of milk into cup, perhaps the possibility of a nice dunking biscuit on the side. We have a wealth of paraphernalia that goes with brewing up – special pots, cups, saucers with shelves for the bickie, special spoons for precise amounts of sugar, special sugar, sugar spoons – yes, spoons made of sugar! – special biscuits made to dunk and not break off, special biscuits made to dunk and break off……..tea cosies, trivets, pot stands, kettles to boil on the hob, with a plug, over the fire, on the Aga. Northern tea is strong, Southern tea is weak. British tea is milky, Irish tea is something you can stand a spoon up in. Rooibosh or camomile? Earl Grey or Lady Grey? Breakfast or Darjeeling? Every aspect of tea making has been thought through, catered to and created.

But beneath that benign and flavoursome surface, brown and scented, there is a backstory to make the Borgias tremble.

Do you make tea in your office? Do you make tea for everyone in your office? Do you visit each office on your floor, each room in your office, each desk in each room, and ask if anyone wants a brew? Or are you selective? Do you notice who asks whom? Do you spot that Hilda in the HR department always asks the chaps in Business Development if they want a brew, but never ventures as far as Finance? Do you notice that the PA to the CEO makes his tea and tea for the Ops Director but not for the MD? Do you feel offended that Sue takes her tray around to three of the five offices but misses yours, even though you always buy her a drink at the Christmas do? Do you deliberately whip past Jacks office door with the tray so he won’t notice that you are missing him out in your disapproval of his office romance? Or do you make sure he does see you with your tray so that he clocks your disapproval? Do you preen a little when the Finance Director offers you a (rare) cup when he is trying to get a favour from your team? Do you recognise that the woman with the gammy arm never makes tea not because she hates you all, but because she can’t manage the tray, or do you hold firm to your tea-induced prejudice that tells you that anyone making, or not making, tea has an ulterior motive?

The teacup has become a Weapon of Mild Distraction in offices across the country, where staff wait, with bated breath and an offence poised to be taken, to see who pours for whom and who gets the Jaffa Cake and who gets the HobNob. And as for the cakes………..

Tea, the cup that could cheer.  I have an idea: let’s use the teacup in the friendly way it was intended – I will if you will! Pop the kettle on, rattle the tea caddy, rustle that biscuit packet, and let’s raise a cup to friendship (or if not friendship, at least human warmth and a commitment to get along  ) and promise to work together in harmony and peace.  That ritual of preparation has been developed for a reason – to allow us to connect, show affection and warmth, and keep our hands busy. Let’s get brewing! Mine’s a Rooibosh!

%d bloggers like this: